The very worst day.

It is with absolute shock and shattered hearts that we share this update. Sophie’s scans showed that her Lymphoma has returned and has spread. It’s in her spinal fluid, bone marrow, all in her chest, and there’s now tumor invading her heart muscles. It very obviously does not respond to chemo and it’s too aggressive for her little body. It would’ve almost certainly come back had we done transplant a month ago so we made the right call not putting her through that.

We have no idea how long she has-it could be days, a week, a few weeks…we have no way to know. We do know that she’s currently stable and comfortable and that’s what matters. We will not be putting anymore poison in her body to make her feel worse and suffer. Chemo is no longer an option and we just can’t keep making her feel like crap for no reason. We want what time she has left to be comfortable and surrounded by love even if that means her time is a bit shorter. She has been so brave and strong but this is her body telling us that she can’t do it anymore. We are getting our complete healing, just not in the way that we wanted here on earth.

Please know that we cherish each of you and are so incredibly humbled by your love over the last 7 months. We do ask that everyone please respect our decisions and our need to be a family for what little time we have left together.

Please keep praying for our miracle.

God is still good and He’s still Bigger.

85 thoughts on “The very worst day.

  1. May God touch you with His peace and soothe your hearts in this journey. Glory be to God, however this baby is healed – she will be made perfect.

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  2. I write this with a very heavy heart. You have both gone to the ends of the earth for your precious Sophie. Your faith, hope and love have been beacons of strength and courage, even when you didn’t feel strong. My family’s prayers will continue for Sophie to rest comfortably, to know your love is never failing and to give your heart more sweet memories to carry throughout your life. With much love I pray for your Peace, Comfort and the strength to lean on God and each other, for you will always be Sophie the Brave’s Mommy and Daddy.
    Much Love and Many Prayers.

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    • I agree with every word. There are no words that I can add except how it reminds me how very blessed my spouse and I are. My prayers for Sophie and her parents. God certainly has great plans for her and will care for her always. It’s a small thing to say, at this time but one day
      they will all be together again. 🙏

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  3. Tearfully, I express my sadness for your sweet little family; I respect your decisions and I think that I would do the same. God Bless♥️

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  4. May God be with y’all. Our prayers r definitely with y’all. We pray that y’all have all the peace & comfort that y’all need for the rest of y’alls life.

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  5. Praying that God gives you strength and courage and that you have very special moments in the days ahead. May God hold each of you close in the palm of His Mighty Hand.

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  6. We send all the love and prayers to you possible. May God hold you tight as you share every moment you can with brave Sophie.

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  7. I’m so sorry. This is devastating news for you all. Please accept my prayers for peace and some joy as you spend this time as a family. Paying for a miracle for your wee angel.

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  8. Our love goes out to all of you. We love yall and pray for your strength.

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  9. Me llega al corazón , tengo a mi niño de los 8 meses enfermo y cada. Día que vivo con el es un regalo de Dios el estoy segura que lo a sanado , y creo que no abandonará a sofie , desde acá bien lejos tu pequeña es una luz

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  10. Un abrazo y muchas bendiciones,la noticia m causó dolor e impotencia, estoy con uds. Con todo corazón, oro p la bella Shopie y por uds Sus padres,ejemplo de fortaleza y fe, en todo momento Dios está con ustedes,

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  11. May your precious daughter have as pain free last days as possible. Keep your faith in the resurrection hope that you will see her again just as it says at John 5: 28. What a happy reunion that will be! My heart goes out to both of you parents. I know a little of what your going through because my grandson got cancer at age 4. It was bone cancer. He had his leg amputated. The Bible says the day will come when no resident will say they are sick. We need God’s Kingdom to come soon to accomplish it.

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  12. I admire your decision to give her life for her days ahead. Your brave decision tells me how much you love your sweet girl. Now go love on her. Best decision ever.

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  13. So sad to hear this news. I pray that Holy Spirit comforts your family. You could try the natural route with juicing, CBD, and supplements. May God give you wisdom. I pray that you get your miracle!

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  14. Praying for a miracle for this angel 👼
    May god bring you peace and comfort during this time. Cancer has touched me and my families lives many times, and through all of it God has held us in his hands. Trust in him and he will do the same for you. 🙏

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  15. From one mother to another mother my deepest sympathy & heartache for you as a mother. I can’t imagine losing my son, but what I can do is tell you that your strength is inspiring!! May the Lord bless you & comfort you in the days to come. May God’s peace be with you & your little girl!

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  16. Dear Skiles family, We are so very sad to hear this bad news. Sophie has been and continues to the brave one indeed. God is now calling on all of us to be brave like her. The trust of a child to go on this journey and just be “held”. We will pray this for every moment that unfolds. Much love and prayers for Sophie the Brave and all Of her family!

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  17. I have followed your journey from the beginning. You are all very brave in deed and you are most assuredly doing the right thing. I pray that she can go outside and feel the sunshine, dance with her daddy, cuddle with grandparents and feel completely surrounded by love, peace and lots of laughter. I know the family will no doubt cherish every single day. I have gained strength from reading your stories. No one can say why one lives and another does not. All any of us can do is make the most of every single day while it is granted to us. Tomorrow is never promised, today is a gift and that is why it is called the present. I don’t have anything to make the hurt go away, but I do know God will be with you and never ever forsake you.

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  18. I am so saddened to hear your precious Sophia did not receive the earthly healing so many of us have prayed for her. I can’t imagine all your feelings and emotions, but I just can’t wrap my mind around children suffering this terrible disease. I pray The Lord gives you the peaceful transition you so desperately desire, and Sophie can be comfortable and happy. Wishing your family every possible blessing God can provide you with to find your way through this.

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  19. Our hearts break for you & our prayers pour out for you & your sweet precious Sophie. May God grant you rich & sweet family time and make His love, faithfulness & peace ever present in your lives. Our love & prayers.

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  20. My heart aches for your family right now, Sophie is an amazing little angel. Im sending lots of hugs and kisses and prayers all the way from South Africa. love from: Nathalie Collins

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  21. My heart aches for you as you share this news with us. Praying now for that comfort only God can give and that you know so well. Thank you for sharing through it all. You have truly been a bright light and encouraging to others through this most difficult time. Special thoughts & prayers for Sophie , entire family & caregivers.

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  22. We will pray for all of you and God’s miracle. You are right, God makes anything possible. Praying for peace and little Sophie’s comfort.

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  23. I pray Gods supernatural peace and His comfort will be with you all during the days ahead. Take in each moment and each loving look and hide them in your hearts. Give her your love and smiles and hugs and sweet comfort.

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  24. I don’t know you but my heart breaks for you. You have a been blessed with an amazing child and you being so strong to make a decision like that , my hat is off to you. God bless you and your family

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  25. My heart breaks for you. God Almighty has known about this since creation and has put everything in place for you. May you feel the comfort of His presence as He takes you through this journey. May you see His glory in this. My prayers are with you.

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  26. I do not personally know your family yet have been following your story and praying for a for a different outcome for Sophie The Brave. Sophie is in our hearts and prayers for comfort & peace while surrounded by the love of her family and friends. With love and prayers.

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  27. My heart hurts for this family. I pray for God’s strength & comfort for this family during the difficult times ahead. They have been an encouragement to many with their strong faith. I pray God wraps his arms around them & they feel his presence giving them all that they need to face the future journey.

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