The very worst day.

It is with absolute shock and shattered hearts that we share this update. Sophie’s scans showed that her Lymphoma has returned and has spread. It’s in her spinal fluid, bone marrow, all in her chest, and there’s now tumor invading her heart muscles. It very obviously does not respond to chemo and it’s too aggressive for her little body. It would’ve almost certainly come back had we done transplant a month ago so we made the right call not putting her through that.

We have no idea how long she has-it could be days, a week, a few weeks…we have no way to know. We do know that she’s currently stable and comfortable and that’s what matters. We will not be putting anymore poison in her body to make her feel worse and suffer. Chemo is no longer an option and we just can’t keep making her feel like crap for no reason. We want what time she has left to be comfortable and surrounded by love even if that means her time is a bit shorter. She has been so brave and strong but this is her body telling us that she can’t do it anymore. We are getting our complete healing, just not in the way that we wanted here on earth.

Please know that we cherish each of you and are so incredibly humbled by your love over the last 7 months. We do ask that everyone please respect our decisions and our need to be a family for what little time we have left together.

Please keep praying for our miracle.

God is still good and He’s still Bigger.

87 thoughts on “The very worst day.

  1. My heart breaks for you! Still praying and believing for a miracle for your sweet girl!!

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  2. I’m so sorry. I applaud your decision for no more chemo. It takes special parents to make that decision. Although it hurts my heart for y’all to have to go through this, I admire your love for your daughter and your faith in God. May God truly bless your whole family. You will be in my prayers.

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  3. Such sad sad sad news! My thoughts and prayers are with you. You are the Best Parents! God bless you two. Stay strong for each other. Hold on to one another. Love, and try to understand one another feelings and thoughts.

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  4. My heart breaks for you but. absolutely have the most respect for you as parents and am in awe of your strength and the strength of you’re precious girl. I’m praying for healing, peace and comfort.

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  5. Continuing to pray for Sophie, her mom and dad, and grandparents! Asking God for a miracle and for peace and comfort for you all. My heart breaks for you all, but I KNOW God has you in his hands.

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  6. So sorry for the sad news. Still will be praying for all your family. God bless and comfort you and give you strength in the days ahead.

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  7. I’m so very sorry to hear this devastating new about your beautiful brave baby girl. My thoughts and prayers are with you and your family, may God bless you all.

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  8. You have my love and prayers dear ones…I have been following Sophie’s journey from the beginning. I’m so very sorry to hear this news. I pray God hold you all in His everlasting arms of love, peace and comfort 🙏🏻

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  9. Im soo very sorry about this news it breaks my heart that you guys have to go through this. Yall are in my prayers and hopefully and praying that you guys get your christmas miracle.

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  10. I’m so sorry. Our thoughts and prayers are with you and your family during this difficult time.

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  11. My heart goes out to your little Sophie, dear love. I know the Doctors may tell you one thing, but God has the final say over all things. You and you’re family are making the right decision, and I’m here to say I stand with you. I here a lot of ppl say Cancer won, Cancer has taken another life. But Cancer never wins, Cancer wants you to die the minute you get diagnosed. It wants you to be weak, sick, & depressed all the time. But I’ve read your story about your beautiful daughter Sophie, & I know you have a little fighter on your hands. So no matter what the out come maybe just know Sophie will be in good hands. And She’ll be with the other little angels playing and enjoying heaven. My thoughts and prayers are with you and your family.💕

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  12. So sorry to hear this. As a pediatric nurse, I know it hurts to make these decisions and have to go through this, but I honestly believe that at this time you spend as much time as possible and enjoy every second. If discharge is possible, then please go home and enjoy the holidays with your family.

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  13. To say I’m so sorry seems so small. This is devastating. I pray that she will be comfortable and at peace. Enjoy every second with that beautiful little girl. It’s so unfair. I’m truly sorry…

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    • She will soon Be with Jesus, what a beautiful picture that paints in my heart. She will be feeling no pain but more love than she has ever felt. She will feel wonderful and I’m sure she will be singing with the angels. This place called Earth is nothing compared to the imagineable Heaven prepared for her. Look forward to seeing her again and wholeness and completeness love joy and peace that surpasses all understanding

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  14. I just have no words right now 😔 Keeping you all in my thoughts and prayers 🙏 I’m so sorry to hear this.

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  15. I am so very sorry. I can’t even imagine what your going through. Continuing prayers for your sweet baby girl and the whole family. Thank you for sharing her with us.

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  16. There are no words to say how sorry I am for this baby. I’m praying for complete peace and trust in God for the whole family .I have never met u but I love you,God loves you and I hurt for you.😥❤️😥❤️😥❤️😥

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  17. My heart and thoughts are with you all.
    Sweet Sophie the Brave has shown all of us what a warrior really is. She’s not losing this fight, she’s winning. She has shown us how to live and how to love in her short, little life. She has more courage than many of us put together.
    May every minute she has left be spent surrounded in love.
    I pray her transition is gentle and painless.
    Your challenge as her loving family is to remember to go on. Some days will be dark, but one day you’ll see color again, you’ll hear her laughter in your heart and you’ll know it’s ok to live. It will be, I promise. I know this firsthand.
    Sweet Sophie, thank you. Thank you for sharing your journey with us. You are loved.

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  18. You are all so strong and so brave. You are doing what is best for your sweet Sophie. That is all a child could ask for. I pray for peace and comfort. You are wonderful parents.

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  19. Sad news but for God nothing is impossible my prayers and love for her parents 😢❤️😢❤️

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  20. My heart is hurting right now. Spend ever minute you have with her. Prayers for the family hold each other tight . May God watch over y’all.

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  21. I am so heartbroken to hear this . That little girl is so blessed to have you as parents . She is touching so many hearts right now and being such an inspiration as a brave little angel . You and your family and especially little Sophie are in my heart , my thoughts , and in my prayers . She is in the palm of Gods hands and always has been . I didn’t know her , but I felt like I did after following her on Facebook. She really made such an impact on my life . God used her in a mighty way . It’s comforting to know that we will all be together some day

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  22. There are not words! My prayer for you all is for peach, comfort, and strength in the day to come.

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  23. Oh so sorry to hear this. I know your hearts must be broken while at the same time, the grace upon you is so apparent. We will continue to pray.

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  24. Prayers for you and this sweet baby. There are no words of comfort during a time like this. We all have plans for our sweet babies which do not include any kind of cancer, pain, or hurry in their sweet innocent eyes. I pray for healing for her and time for you to have with her. Whatever the outcome, know God has a plan. This will not make the journey any easier but if you keep faith you will be with each other in the end. As a mother I can not imagine what you as parents are going through. Or child had cancer at 10 mos. And I felt like my life was over when the diagnosis came in. What they go through is horrendous, but to watch you stay so positive had been an inspiration to many. I will continue to pray for you guys!

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  25. I am praying for all of you. All of you have been fighting for Sophie every minute through out all your hours. I am heartbroken for you and your family. Remember our Father God is with all of you especially Sophie. He will heal her with his glory. She will be forever healed by his side. She will forever be loved in your hearts.

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  26. Having lost my daughter just 13 months ago too cancer I know how awful this journey feels. Only Jesus can help you through this. I pray so hard that our loving Lord will grant you all His perfect peace. Sending tons of love and a million hugs.

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  27. Today it is 2 months since my brave beautiful daughter gained her angel wings after fighting leukemia for two years. My heart and prayers with you at this extremely difficult time. Xxx

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  28. Your faith throughout this journey you’ve been on has been astounding. My heart breaks for all of you and it seems so unfair that sweet, precious children get sick like this. But this is a broken world we live in and God never said we would have an easy, pain free life, but He has said that he will be there with us and will suffer with us and walk by our side though it all. I pray that Sophie’s journey to be with God is pain free and that God gives you all peace when she is eventually received into Jesus’s arms.

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  29. Your suffering is not in vain brother. This hurts, and we won’t understand it, but the Lord does.

    I cannot fathom the pain. But I can share the burden with you.

    Our God reigns!

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  30. My thoughts and prayers are with Sophie, you and your family during this difficult time. I have prayed and followed you for quite some time and my heart is heavy today for your news. Regardless Sophie is a beautiful blessing and God is working in your lives, I continue to believe this. Praying for peace, comfort and answers in the days to come.
    God bless you Sophie!

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  31. Although I have never met this sweet angel she is touched my life in so ma y ways ,as y’all all have. I am continuing prayers for each one of you an that sweet girl . GOD IS BIGGER . We love y’all to ❤

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  32. Hugs and prayers. You are a brave family and you are doing the right thing for Sophie just know you did everything you could for your girl … I hope you have some beautiful days yet …enjoy every minute
    I hate ALL. It’s such a nasty disease from a mother who lost her 21 year old daughter just 3 months ago to the same nasty cancer

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    • My condolences to you and your family on losing your beloved daughter. But let me just give you some words of encouragement sweetie. Always Remember Cancer never wins,Cancer wants defeat and conquer the moment a person is diagnosed with this disease. It wants to take the energy and life from a person right then and there. But I’m sure your daughter was a fighter,& she fought until the very end. In my book Cancer never wins.

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  33. I can’t imagine how this must place such a heaviness in your heart. I will be praying that your time with Sophie and family will be blessed with daily “miracles” of love, peace, comfort, smiles, and the presence of God. May God grant you strength for this journey!

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  34. My heart breaks for your family and this precious little girl of yours. Prayers for peace and comfort for the days to come. Prayers that God gives you a peace that surpasses all under standing. May God Bless.

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  35. My prayers are now for peace, comfort & strength & JOY for you, your precious family & for precious little Sophie!! My heart breaks for you all but thankful we serve a Bigger God! 🙏🎀💕🙏

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  36. I cannot even imagine. So heartbreaking to hear this sad news. May you all be surrounded by the wings of angels and God’s love and comfort. I’m so sorry.

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