I’m Sophie’s mom, Shelby! Sophie was a normal, healthy 2 year old until May 18, 2017. My husband, Jonathan, and I rushed her to the ER with breathing complications and were immediately sent to Children’s in Dallas where we discovered a ‘large softball’ sized tumor in her chest. My sister and I named her tumor SHONDA after Shonda Rhimes, creator of Grey’s Anatomy because she ruins everyone’s lives and destroys all happiness on that show.
Soph was diagnosed with T-Cell Lymphoblastic Lymphoma. We were in and out of the hospital for 12 weeks with fevers and getting chemo. On August 8th we were moved to ICU on a ventilator while she got 15 rounds of highly aggressive chemo in 5 days because she wasn’t responding to chemo-we almost lost her. We have been hospitalized or at a rehab facility, every day since. The chemo has completely wiped out her ability to eat, walk, talk, use her hands, and do pretty much anything independently at all-hence the rehab stay. Thankfully and miraculously, that chemo saved her life and early in October we found out that she’s essentially cancer free! We have a bit more chemo to do then we will be headed to Cook Children’s in Ft Worth to begin a rigorous and scary stem cell transplant process that will hopefully eradicate any remaining bad cells and save her life.
My goal through this entire process has been to be transparent and honest and shine light on what really goes on during a battle against cancer. I haven’t sugarcoated the bad days but, I’ve also been able to show the great work the Lord has done in the last few months of our lives. I hope to continue to do that as we continue on. We wouldn’t have hope without Jesus and it’s truly my privilege to share that with others. I’ve also found that I enjoy the writing process and it’s been quite therapeutic for me. So that’s where this blog comes in!
Thank you for taking the time to read our stories!