Baby Brother’s Big Scan

I’d be lying if I said that this pregnancy has been easy. Ironically, it’s been physically an absolute dream so far-completely different that the first 18 weeks with Sophie. Not being on full restricted bed rest with constant hemorrhaging…obviously that’s been amazing. And I knew that mentally and emotionally this would be hard…adding hormone overload to to grief was never going to be fun. It’s been harder than I anticipated.

Trying to balance extreme sadness with extreme joy without feeling guilty about it. Managing such big feelings of loss and wanting to prepare for something new. Being completely torn with so badly wanting another girl but, also being really excited for something new with a sweet boy.

It’s been a rollercoaster.

So naturally, I’ve been a nervous and anxious wreck leading up to our big 18 week anatomy ultrasound. All I’ve wanted was to see fingers and toes and healthy organs. I’ve been terrified that they’d find a giant softball sized tumor in his chest like his sister’s. I’ve needed to lay eyes on him.

Yesterday, we got that.

Connor is absolutely perfect. He’s measuring exactly where he should be. His brain, heart, and other systems are all perfect. There’s no tumors. He’s just a tiny, sweet little boy….he’s DEFINITELY a boy.

He even looks a lot like Sophie’s 18 week ultrasound. And we are so thankful. It made it even more real. Seeing him looking like a real human-and he’s ok…it took a weight off I didn’t even realize was there.

Will that weight stay off? Probably not. That’s just how grief and anxiety work. It’s how life after cancer works. But it’s life…it’s our life. Continually living between sadness and joy while being filled up with unending Grace from the One who loves us more than we can imagine.

#SophietheBrave #DoMoreForSoph #GodisBigger #OneDayCloser #cancermom #childhoodcancerawareness #lymphomasucks #childloss #lossmom #rainbowbabybrother #ConnorJackson #BigSisterSoph

Next steps are really hard

I did a really hard thing.

A thing that has been hanging onto my mind for weeks.

The thing I’ve been dreading ever since we found out that Baby #2 is a boy.

I cleaned out and packed up Sophie’s things.

She was never at our current home. We moved shortly after she relapsed. We wanted to be closer to our local hospital, to our support system, and we wanted a new clean environment for her to come home to.

But she never came home.

Most of her things were already in bins in the closet but, clothes were in the dresser and the whole closet was hers…but little brother is coming. And I’ll confess to feeling immense loss at that. Don’t get me wrong, I’m SO EXCITED to meet my son. I already love him and want him here. But I’m also mourning being a girl mom. I’m so sad that there won’t be any bows or tea parties. I probably won’t be watching Sofia the First or Tinkerbell. My favorite baby girl outfits won’t be getting reworn. And I’m sad. So freaking sad.

So, this week, I got It all out and packed it up. I touched it all. Every piece of clothing. Every blanket and towel. Every bib and burp cloth. Everything she once wore or touched. I cried and smiled and admittedly really wished I could’ve had a glass of wine while I was doing it. But I got it done.

I was even able to pull a few gender neutral outfits out that brother can wear and some towels and blankets that he can snuggle in. I got out the bottles and nursing accessories. And I packed the rest up for my parents’ attic…praying that one day, we’ll be blessed with another girl that will use them.

The best part though, is what didn’t get packed up. We decided that some things are just too special for storage. Too important to be packed away. And those things now have a very cherished place. We got a storage ottoman for our room…and I set aside things for that place. So now, she has a place in our room with us. And that makes my heart happy.

I can’t say that doing this made me feel ‘better’…it sucked. Every second of it just plain sucked. I should be setting up her own ‘big girl’ room AND baby brother’s room-not packing her stuff away. But I do feel a sense of a weight lifted off. This big thing on my to do list that I don’t have to stress about anymore. Now, I feel better about preparing for Connor…because Sophie’s things have been cared for and placed in a special place.

#SophietheBrave #DoMoreForSoph #GodisBigger #OneDayCloser #childhoodcancerawareness #cancermom #childloss #lossmom #rainbowbabybrother #ConnorJackson #BigSisterSoph #livingwithgrief

2nd Annual Sophie The Brave Day

I’ve been reflecting on Sophie’s birthday for the last week and it was such a sweet day. A day that carried a lot of anxiety but also so much happiness.

We visited the hospital and it was so special. I reached our to friends and family on my personal page about wanting to shop for the Child Life department and they showed up in an amazing way! Over $800 was donated to go towards this shopping!

We were able to get a HUGE haul of activity packs, books, and supplies for the prize closets. We got 4 nurse goodie baskets for each of the Oncology units. We were even able to get extension cords and phone batteries for parents as well as laundry pods for Ronald McDonald House.

And we delivered it all!

I love this hospital. I love walking where she walked and seeing the places she loved. I love the people there. They know us in a way that no one else ever will. They knew and loved our girl. They cared for her in her weakest and us in ours. For me, being there feels like going home and the people there feel like family.

It was a sweet day in spite of the sad.

Beauty from ashes.

And next year, little brother will get to visit too.

You should be 4

4 years ago, on March 19, 2015, I hoisted my very pregnant self out of bed at 6:15 and started to get ready for work. I was 38 weeks pregnant exactly and feeling great. I had been to the doctor the day before and she said she’d be surprised if I made it to my due date. I had had zero Braxton Hicks contractions and really no other signs of labor so I started my day like I always did. I was in the bathroom brushing my teeth when….I sneezed….and my water broke. Like movie theater, complete fish, water breaking. I froze toothbrush still in my mouth and stared at myself in the mirror.

Oh man.

This is happening.

So, I threw a towel on the floor and started calling! I called my doctor, my boss, my mom, and finally Jonathan…who of course, had woken up earlier than normal and decided to go on to the gym. I knew he’d take a bit to get home so I finished getting dressed, packed the last few things in my labor bag, and folded the last load of laundry. Our house was officially ready for Sophie.

When Jonathan got home, we loaded up and headed out. I hadn’t started contracting or anything yet so we weren’t even frazzle. Just ready to meet our girl. Then, they started. I started having some pain about 20 minutes before we got to the hospital and of course…it was 8AM so we went through 200 school zones!

We finally got to the hospital and I knew something was off. The contractions weren’t terrible but my back/tailbone area hurt so bad I couldn’t stand up. Upstairs in L&D we got checked in and settled into a triage room with my nurse Jacinda and I couldn’t even sit down my back hurt so bad. She suspected back labor was the culprit. Everything else was great. My water had, in fact broken. Sophie was doing great with a strong heart beat. My contractions were coming 3-5 minutes apart and I was dilated to a 3. My blood pressure was great…it was just that dang back pain. I had to stand up with my elbows on pillows. I

Initially hadn’t planned on getting my epidural until I was a little further along because I wanted to be able to walk around. But the back pain was too much so Jacinda was an angel from heaven and got the anesthesiologist to me 45 minutes after I checked in.

After that, the rest of the day was pretty low key. I was pain free…stuck in bed…but I was comfortable. Friends and family came in and out, I took a nap, Sophie was still doing great and my contractions were still progressing. It was slow but not too bad.

FINALLY, at 5:30pm I was a 10 and it was time to push. The first push was hard but my doctor said ‘I see her head! This will go fast!’……but an hour later, still no baby. She was stuck. We realized that the reason I was having such horrible back labor was that Sophie was what they call ‘OP’… meaning she was face up instead of face down. So her shoulders were stuck in my pelvis. She was still doing great, her heart rate was fine…but I was exhausted. We decided one more push and if she didn’t come out then I’d have to have a c-section. At that point I was honestly fine with any option that got her here safely.

Thankfully, that last push, with a little help, brought out my perfect 6lb 9oz 19 1/2 inch long Sophie Kay Skiles. She was perfect! They immediately put her on my chest and I just stared at her. I don’t remember anything else…Jonathan cutting the cord, my doctor finishing up and leaving….nothing…just her-on my chest-looking at me.

She was perfect. The hospital stay was uneventful and honestly pretty great. She nursed like a champ. We got pretty decent sleep all things considered. And we had our perfect one.

I miss her today. So much. But, I’m also overcome with thankfulness that I was able to spend 2 years 9 months and 16 days with my perfect Punkin. I’m thankful for every second.

So today, be thankful for those you love…and those you lost. And maybe today, Do More for my Sophie. Be kind…go out of your way to make someone’s day. Because she made every day amazing.

Happy Birthday my little love.

I loo much.

A New Chapter

I realized today that I hadn’t posted on the blog in awhile and that some of you on here do not have social media! So, I wanted to quickly share our news….

It’s been a rough year for us and will continue to be rough without Sophie but, we are thrilled to announce that she’s a big sister. We’ve had two sonograms and Baby Skiles is measuring perfectly with a strong heartbeat. My doctor is being proactive since I’ve had trouble staying pregnant in the past but, we all believe that Sophie picked us out the perfect one to send to us.

While our family will never be complete without her here, we love being parents and can’t wait to have this baby in our arms….and to tell them all about their Brave big sister.

Please be in prayer for us. For health for me and the baby and also for all of the emotions and anxiety that come with any pregnancy but especially with one after loss.

#Sophiethebrave #DomoreforSoph #Godisbigger #onedaycloser #childloss #rainbowbaby #BabySkiles #BetheLight